Skip to content
SilK Foundation

Resource library

Browse our full library.

Every resource here has been reviewed against SilK Foundation’s content quality rules. Use the search and filters below to narrow by category, need, coverage area, or resource type. Visiting a resource opens its external website.

SilK Foundation provides these links as general informational starting points. Inclusion does not constitute endorsement or professional advice. Services, eligibility, and availability may vary by location.

Showing 219 resources.

  • Find Local Help

    211.org

    Finding local food, housing, utility, transportation, and emergency assistance.

    Nonprofit · National · Local referral

    Often the fastest path to local food banks, rental assistance, utility help, and case management — staffed by trained specialists who know what's nearby.

    Details & eligibility
    Last verified
    2026-06-12V2
  • Find Local Help

    Findhelp.org

    Searching free or reduced-cost programs near you across food, housing, financial assistance, medical care, transportation, and legal help.

    Nonprofit · National · Local referral

    Especially useful when you don't yet know what kind of program you're looking for; categories surface options you may not have considered.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    USAGov Benefit Finder

    Finding possible government benefits and assistance programs.

    Government · National

    Use this as a first stop to search for federal benefit programs that may relate to disability, healthcare, food, housing, income, or family support.

    Details & eligibility
    Eligibility
    SilK Foundation does not determine eligibility for government benefits.
    Notes
    Government benefit finder. Eligibility varies by program.
    Last verified
    2026-06-12
  • Find Local Help

    USAGov State Social Service Agencies

    Finding state-level benefit and support agencies.

    Government · National · State-by-state

    Many benefit programs are delivered at the state level. This directory shortcuts you to the right agency in your state.

    Details & eligibility
    Last verified
    2026-06-12
  • Aging Parents & Elder Care

    Eldercare Locator

    Finding local services for older adults, caregivers, and families.

    Government · National · Local referral

    Search by ZIP code to find local meals, transportation, respite, and elder-care services through your Area Agency on Aging.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    Social Security Disability Benefits

    Understanding Social Security Disability Insurance (SSDI) and the disability benefit application process.

    Government · National

    Authoritative source on SSDI, SSI, and the disability application process for adults and children.

    Details & eligibility
    Last verified
    2026-06-12
  • Benefits & Government Support

    SSA Supplemental Security Income (SSI)

    Understanding Supplemental Security Income (SSI) eligibility and applying.

    Government · National

    SSI is distinct from SSDI (work-history based). Many families don't realize a disabled child or adult may qualify for SSI even with no work history.

    Details & eligibility
    Last verified
    2026-06-12
  • Caregiver Support

    Caregiver Action Network

    Family caregiver education, peer support, and a help desk.

    Nonprofit · National

    If you need to talk to someone who has been there, their help desk and peer programs are a good starting point.

    Details & eligibility
    Last verified
    2026-06-12
  • Caregiver Support

    Family Caregiver Alliance

    Caregiver support, education, and guidance on caring for an adult with cognitive or physical impairment.

    Nonprofit · National

    Especially strong on cognitive impairment, dementia care, and long-term planning.

    Details & eligibility
    Last verified
    2026-06-12
  • Disability & Lifelong Care

    The Arc of the United States

    Intellectual and developmental disability advocacy, family support, and local chapters.

    Nonprofit · National · Local referral

    Use the chapter locator to find a local Arc — often the most knowledgeable local advocate for families navigating IDD systems.

    Details & eligibility
    Last verified
    2026-06-12
  • Find Local Help

    Feeding America Food Bank Finder

    Finding the closest food bank or pantry network by ZIP code.

    Nonprofit · National · Local referral

    Single national entry point for emergency food across the U.S. — type a ZIP and the next page is a real local agency.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Find Local Help

    2-1-1 Texas

    Texas-specific food, health, housing, utility, and social-service searches.

    Government · Texas · Local referral

    Often returns more granular Texas-local results than the national 211 portal — especially for state programs and Texas-specific assistance.

    Details & eligibility
    Area served
    Texas statewide
    Last verified
    2026-06-12
  • Find Local Help

    Houston Food Bank

    Houston-area families needing food assistance, pantry locator, or mobile distribution schedule.

    Nonprofit · Houston / Harris County · Texas

    Highest-volume single food source for Houston families — locate a nearby pantry, mobile distribution, BackPack Buddies for kids, or Senior Box.

    Details & eligibility
    Area served
    18 Southeast Texas counties including Harris County
    Last verified
    2026-06-13V3
  • Benefits & Government Support

    USAGov Disability Benefits and Services

    Understanding disability-related benefits, services, and caregiver payment programs.

    Government · National

    Surfaces multiple federal disability resources in one place — useful when you don't yet know which agency or program applies.

    Details & eligibility
    Last verified
    2026-06-12
  • Benefits & Government Support

    Medicare Information from USAGov

    Understanding Medicare eligibility, enrollment, and parts.

    Government · National

    Helpful primer before navigating Medicare.gov or talking to a benefits counselor.

    Details & eligibility
    Last verified
    2026-06-12
  • Benefits & Government Support

    Social Security Family Benefits

    Understanding benefits that may be available to spouses, children, or surviving family members.

    Government · National

    Many families don't realize a spouse, dependent child, or survivor may be eligible. This is the official explanation.

    Details & eligibility
    Last verified
    2026-06-12
  • Benefits & Government Support

    USDA SNAP State Directory

    Finding the state SNAP office where a family applies for food benefits.

    Government · National · State-by-state

    SNAP is administered state by state — this is the authoritative starting point for finding your state's online application or local office.

    Details & eligibility
    Last verified
    2026-06-12V2
  • Caregiver Support

    AARP Family Caregiving

    Practical caregiver education, planning tools, and checklists.

    Nonprofit · National

    One of the most useful free libraries of caregiver-focused practical content available online.

    Details & eligibility
    Last verified
    2026-06-12
  • Benefits & Government Support

    Medicaid & CHIP State Profiles

    Navigating Medicaid and CHIP eligibility by state.

    Government · National · State-by-state

    Medicaid eligibility rules and application paths vary by state — this is the federal starting point that links to each state's program.

    Details & eligibility
    Last verified
    2026-06-12V2
  • Find Local Help

    BakerRipley Utility Assistance (CEAP)

    Harris County households facing utility shutoff or unable to pay heating/cooling bills.

    Nonprofit · Houston / Harris County

    Local agency that actually processes LIHEAP applications for Harris County residents — faster route than starting at the state office.

    Details & eligibility
    Area served
    Harris County, Texas
    Last verified
    2026-06-13V3
  • Find Local Help

    LIHEAP Office Search

    Finding the local agency that takes LIHEAP applications for heating, cooling, and utility-arrears help.

    Government · National · State-by-state · Local referral

    Best starting point when a family is facing a utility shutoff, has unpaid heating/cooling bills, or needs help with a deposit on a new utility account.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Caregiver Support

    National Family Caregiver Support Program

    Understanding federally supported caregiver assistance delivered through state and local agencies.

    Government · National · State-by-state

    Use this page to understand what your state's program offers, then call your Area Agency on Aging for specifics.

    Details & eligibility
    Last verified
    2026-06-12
  • Aging Parents & Elder Care

    ACL State Units on Aging

    Escalation point when the Eldercare Locator or a local AAA can't resolve a question.

    Government · National · State-by-state

    When a family needs to escalate above the county level — appeals, policy questions, statewide programs — the State Unit on Aging is the right office.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Aging Parents & Elder Care

    Area Agencies on Aging

    Finding the local aging-services agency near you.

    Government · National · Local referral

    The single most useful next step for almost any aging-related question.

    Details & eligibility
    Last verified
    2026-06-12
  • Financial Navigation

    PAF National Financial Resource Directory

    Searchable directory of financial-assistance programs by diagnosis, state, and need.

    Nonprofit · National · State-by-state

    When co-pay assistance, household-bill help, or a disease-specific fund is the question — PAF's directory is the most thorough one-stop lookup.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Aging Parents & Elder Care

    Texas Aging and Disability Resource Centers (ADRC)

    Texas families looking for long-term services and supports navigation.

    Government · Texas

    The Texas-specific starting point if you need help navigating Medicaid waivers, long-term services, or in-home support.

    Details & eligibility
    Area served
    Texas statewide
    Last verified
    2026-06-12
  • Disability & Lifelong Care

    Disability Rights Texas

    Texans facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Texas

    Best first call in Texas when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    All 254 Texas counties
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    USAGov Disability Benefit Finder

    Searching benefits related to disability or qualifying illness.

    Government · National

    Especially useful when you don't yet know whether a condition qualifies for federal programs.

    Details & eligibility
    Last verified
    2026-06-12
  • Disability & Lifelong Care

    Aging and Disability Resource Centers (national)

    Long-term services and supports navigation.

    Government · National · State-by-state

    ADRCs are the federally-recognized single point of entry for long-term services and supports across the U.S.

    Details & eligibility
    Last verified
    2026-06-12
  • Medical Crisis & Severe Illness

    Hospital Social Workers & Patient Navigators

    Finding help inside the hospital or care system you're using.

    Healthcare system · Local referral

    Ask any nurse, care coordinator, or front desk staffer: "Is there a social worker, patient navigator, or financial counselor I can speak with?" They can help with financial assistance, discharge planning, transportation, equipment, and community resource referrals — typically at no cost to you.

    Details & eligibility
    Notes
    This is internal guidance — there is no single national website. Ask at your hospital, clinic, or care facility.
    Last verified
    2026-06-12

    Ask at your hospital, clinic, or care facility — no single national website.

    Report an issue
  • Medical Crisis & Severe Illness

    EveryLife Foundation Financial Support Resources

    Rare-disease families seeking financial-support pathways and patient-assistance programs.

    Nonprofit · National · Condition-specific

    Especially useful when a diagnosis is rare and you don't know which disease-specific foundation to call first.

    Details & eligibility
    Last verified
    2026-06-12
  • Medical Crisis & Severe Illness

    The ALS Association

    ALS-specific support, education, equipment, and advocacy.

    Nonprofit · National · Condition-specific

    First call for any family newly facing an ALS diagnosis — chapters can help with equipment, respite, and connection to multidisciplinary clinics.

    Details & eligibility
    Last verified
    2026-06-12
  • Aging Parents & Elder Care

    Harris County Area Agency on Aging

    Houston-area older adults and family caregivers.

    Local agency · Houston / Harris County

    Most direct local entry point for Houston-area families needing aging, caregiver, or elder-care support.

    Details & eligibility
    Area served
    Houston / Harris County, Texas
    Last verified
    2026-06-12V2
  • Benefits & Government Support

    USAGov SSDI and SSI Benefits

    Plain-language comparison of SSDI vs SSI.

    Government · National

    Helpful primer before applying — many people don't know which program (or both) they may qualify for.

    Details & eligibility
    Last verified
    2026-06-12
  • Disability & Lifelong Care

    The Arc of Texas

    Texas-specific advocacy, public-policy work, and family resources for people with intellectual and developmental disabilities (IDD).

    Nonprofit · Texas · Local chapters

    First call for Texas families navigating school services, Medicaid waivers, guardianship alternatives, and adult-services transitions.

    Details & eligibility
    Area served
    Texas statewide with local chapters
    Last verified
    2026-06-12
  • Disability & Lifelong Care

    USAGov Disability Services

    Federal disability services across multiple agencies.

    Government · National

    Useful when you don't yet know which federal agency administers a service you need.

    Details & eligibility
    Last verified
    2026-06-12
  • Disability & Lifelong Care

    ABLE National Resource Center

    Understanding ABLE accounts — tax-advantaged savings for people with disabilities without losing benefits eligibility.

    Nonprofit · National

    ABLE accounts let people with disabilities save above the $2,000 SSI/Medicaid resource limit. Many families don't know these exist.

    Details & eligibility
    Last verified
    2026-06-12
  • Medical Crisis & Severe Illness

    Patient Advocate Foundation Co-Pay Relief

    Direct financial help with prescription co-pays for specific conditions.

    Nonprofit · National · Condition-specific

    Funds open and close depending on disease coverage and available dollars — check active funds for your condition before assuming you don't qualify.

    Details & eligibility
    Eligibility
    Funds open and close based on disease coverage. Eligibility depends on diagnosis, insurance status, and household income.
    Last verified
    2026-06-12V3
  • Medical Crisis & Severe Illness

    CancerCare Financial Assistance

    Cancer-specific financial assistance for treatment-related costs.

    Nonprofit · National · Condition-specific

    Most useful early in treatment — funds are limited and reviewed by oncology social workers.

    Details & eligibility
    Last verified
    2026-06-12
  • Emotional & Crisis Support

    The Harris Center 24/7 Crisis and Access Line

    Crisis support, access, appointments, and local behavioral-health navigation for Harris County residents.

    Local agency · Houston / Harris County

    First call for any behavioral-health concern in Harris County — including crisis, accessing services without insurance, and psychiatric emergencies.

    Details & eligibility
    Area served
    Houston / Harris County, Texas
    Last verified
    2026-06-12V3
  • Legal Planning & Legal Aid

    Legal Services Corporation — Find Legal Help

    Finding free or low-cost civil legal aid in your area.

    Legal aid · National · Local referral

    Civil legal aid covers housing, family, benefits, consumer, and other matters — start here when you can't afford a private attorney.

    Details & eligibility
    Eligibility
    SilK Foundation does not endorse specific providers and does not determine whether this resource fits a family's circumstances.
    Last verified
    2026-06-12V3
  • Legal Planning & Legal Aid

    LawHelp.org

    Plain-language legal information and a state-by-state legal-aid finder.

    Legal information · National · State-by-state

    Use when you want to understand a legal issue before calling a lawyer — guides on housing, family, benefits, immigration, and more.

    Details & eligibility
    Last verified
    2026-06-12
  • Legal Planning & Legal Aid

    Lone Star Legal Aid

    Free civil legal aid for low-income Texans in Southeast/East Texas.

    Legal aid · Texas

    First call for Houston-area and East Texas families needing help with eviction, family law, public benefits denials, or consumer issues.

    Details & eligibility
    Area served
    72 counties of Southeast and East Texas including Harris County
    Eligibility
    Eligibility and service area apply.
    Last verified
    2026-06-12V3
  • Legal Planning & Legal Aid

    Harris County Law Library — Finding Legal Help

    Houston / Harris County legal-help directory with self-help resources.

    Local agency · Houston / Harris County

    Houston-specific — includes legal-aid clinics, lawyer referral services, and self-represented litigant resources at the law library.

    Details & eligibility
    Area served
    Harris County, Texas
    Last verified
    2026-06-13V3
  • Emotional & Crisis Support

    988 Suicide & Crisis Lifeline

    24/7 free, confidential support for people in suicidal crisis or emotional distress, and for loved ones supporting them.

    Crisis support · National

    Trained counselors can de-escalate immediate crisis, provide emotional support, and refer to local mental health services.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    National Domestic Violence Hotline

    24/7 confidential support for anyone experiencing or affected by domestic abuse — partners, parents, children, friends.

    Crisis support · National

    First call when someone is in an unsafe relationship or worried about a loved one. Advocates can route to local DV shelters, legal-aid intake, and safety planning resources confidentially.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    NAMI HelpLine

    Non-crisis information, referral, and emotional support for people affected by mental illness and their families.

    Nonprofit · National

    Use when you're not in immediate crisis but need help understanding a diagnosis, finding treatment, or supporting a family member.

    Details & eligibility
    Eligibility
    For immediate crisis, use 988 instead.
    Last verified
    2026-06-12
  • Emotional & Crisis Support

    RAINN National Sexual Assault Hotline

    Free, confidential 24/7 support and local referrals for survivors of sexual violence and their loved ones.

    Nonprofit · National

    Trauma-informed first call for survivors and the people who love them. Routes to local rape-crisis centers and counseling.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    Veterans Crisis Line

    Free, confidential 24/7 crisis support for veterans, service members, and their loved ones.

    Government · National

    First call when a veteran or service member is in distress, or when a family member is worried.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    National Down Syndrome Society

    Down syndrome education, advocacy, and family support.

    Nonprofit · National · Local chapters

    First call for new and expectant parents of a child with Down syndrome — practical guides and local-affiliate connection.

    Details & eligibility
    Last verified
    2026-06-12
  • Emotional & Crisis Support

    SAMHSA FindTreatment.gov

    ZIP, city, county, and distance-based mental-health and substance-use treatment search.

    Government · National

    Most reliable single search for vetted treatment facilities — especially when looking for sliding-fee or payment-assistance options nearby.

    Details & eligibility
    Eligibility
    Verify licensure, services, payment, and current availability directly with each provider.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    SAMHSA National Helpline

    24/7 free, confidential treatment information and referral for mental-health and substance-use concerns.

    Government · National

    Use when you need a person to help you find treatment options near you — especially without insurance or with Medicaid.

    Details & eligibility
    Eligibility
    Referral and information service — not counseling or crisis treatment. For crisis use 988.
    Languages
    English, Spanish
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Brain Injury Association of America

    Brain injury survivors, caregivers, and families.

    Nonprofit · National · Local chapters

    Especially useful for families newly navigating TBI or stroke recovery — links to state chapters and condition-specific support.

    Details & eligibility
    Last verified
    2026-06-12
  • Emotional & Crisis Support

    Certified Community Behavioral Health Clinics (CCBHCs)

    Comprehensive community behavioral-health care, including crisis services and care regardless of ability to pay.

    Government · National

    Best public-system option for people who are uninsured, underinsured, or facing a behavioral-health crisis. Services vary by site.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Find Local Help

    HRSA Find a Health Center

    ZIP-based community health centers offering primary and often behavioral-health services on a sliding fee scale.

    Government · National

    Strong starting point when uninsured or underinsured. Confirm whether the specific site provides counseling or psychiatry — services vary by location.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    SAMHSA Early Serious Mental Illness Treatment Locator

    Programs for early psychosis and serious mental illness, including coordinated specialty care.

    Government · National

    When a young adult is experiencing a first episode of psychosis, coordinated specialty care can change long-term outcomes — this is the federal pointer to programs that offer it.

    Details & eligibility
    Eligibility
    SilK Foundation does not provide medical advice or assess risk. For immediate danger call 911; for crisis guidance call or text 988.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    NAMI Family Caregiver HelpLine

    Lived-experience support and information for people caring for someone with a mental-health condition.

    Nonprofit · National

    Caregivers supporting a loved one with mental illness often feel alone and unsure what to do next. NAMI's family line is built specifically for that conversation.

    Details & eligibility
    Eligibility
    For immediate crisis use 988.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    NAMI Family Support Group

    Free peer-led groups for adults with a loved one experiencing mental-health symptoms.

    Nonprofit · National

    Caring for someone with mental illness is isolating. These groups normalize the experience and surface practical strategies from other families.

    Details & eligibility
    Eligibility
    Peer support, not clinical treatment.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    United Spinal Association Resource Center

    Spinal cord injury and disorder support — practical and peer-based.

    Nonprofit · National · Local chapters

    First call for newly injured people and families navigating SCI rehabilitation, equipment, employment, and accessibility.

    Details & eligibility
    Last verified
    2026-06-12
  • Emotional & Crisis Support

    NAMI Family-to-Family

    Free eight-session education program for family, significant others, and friends.

    Nonprofit · National

    If you have time to commit, Family-to-Family changes how families respond — built on decades of evidence and lived experience.

    Details & eligibility
    Eligibility
    Availability and schedule depend on local affiliates.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    NAMI Greater Houston

    Free local education, support, recovery, and family programs in greater Houston.

    Nonprofit · Houston / Harris County

    Connects Harris County families to the NAMI programs that are actually running locally.

    Details & eligibility
    Area served
    Houston / Harris County, Texas
    Eligibility
    Peer and educational support — not emergency or clinical treatment.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Team Gleason

    ALS-specific adaptive technology, communication equipment, and life-enhancing experiences for people living with ALS and their families.

    Nonprofit · National · Condition-specific

    Often fills equipment and technology gaps that insurance won't cover — especially eye-gaze communication devices, wheelchairs, and accessibility modifications. Apply early in the disease progression.

    Details & eligibility
    Eligibility
    Equipment and program availability depends on funding cycles and application review. Apply through teamgleason.org.
    Last verified
    2026-06-12
  • Emotional & Crisis Support

    Find Your Local NAMI

    State and local NAMI support, education, and family programs near you.

    Nonprofit · National

    Local NAMI affiliates are where the support groups and family programs actually run. National pages point you there.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Financial Navigation

    Texas ABLE

    Texans with disabilities saving for qualified disability-related expenses while protecting public benefits.

    Government · Texas

    A key resource for families trying to save for disability-related needs without unintentionally disrupting SSI, Medicaid, or other benefits.

    Details & eligibility
    Eligibility
    Planning choices can affect SSI, Medicaid, taxes, and benefits eligibility. Consult qualified professionals before opening or contributing.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    VA National Center for PTSD

    PTSD education, treatment information, self-help tools, and family resources for veterans and the public.

    Government · National

    Most credible single starting point for understanding PTSD, treatment options, and what to expect from therapy.

    Details & eligibility
    Eligibility
    Educational resource — not a crisis or treatment provider.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    IRS — ABLE Accounts

    Official IRS source on ABLE-account tax rules.

    Government · National

    Use this when families need the official tax source rather than a summary article.

    Details & eligibility
    Eligibility
    Tax information only — not personalized advice. Consult a CPA or tax professional for your situation.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    National Center for PTSD — For Family and Friends

    Guidance for relatives and friends supporting someone with PTSD, including how to encourage treatment.

    Government · National

    Concrete, evidence-based advice for the hardest moments families face: a loved one who needs help and isn't sure they want it.

    Details & eligibility
    Eligibility
    Does not create authority to compel treatment.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    PTSD Family Coach app

    Free public app for family members supporting someone with PTSD.

    Government · National

    Pocket-sized support for moments when you're not at a computer and need a clear next step.

    Details & eligibility
    Eligibility
    Self-management and education tool — not treatment.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    SSA — ABLE Accounts Spotlight

    Understanding how ABLE accounts interact with SSI.

    Government · National

    Essential for families worried that saving money could affect SSI or Medicaid eligibility.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    VA Mental Health Services

    PTSD, depression, anxiety, substance-use, and other mental-health care for eligible veterans.

    Government · National

    Comprehensive VA mental-health offering — start here to understand eligibility and enrollment.

    Details & eligibility
    Eligibility
    Eligibility and enrollment rules vary by service.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    RAINN Local Service Provider Locator

    Local sexual-assault service providers and survivor resources by ZIP.

    Nonprofit · National

    Concrete path to in-person counseling, advocacy, and forensic-exam support in your area.

    Details & eligibility
    Eligibility
    Verify services and current availability.
    Last verified
    2026-06-12V3
  • Financial Navigation

    Texas College Savings Plan

    Tax-advantaged education savings for qualified higher-education expenses.

    Government · Texas

    Useful for education planning. NOTE: this is for college savings, not disability savings — for disability savings see Texas ABLE.

    Details & eligibility
    Eligibility
    529 college plans are NOT the same as 529A / ABLE disability savings. For disability savings, use Texas ABLE.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    Vet Centers

    Community-based individual, group, and family readjustment counseling for eligible veterans, service members, and families.

    Government · National

    When a veteran or family member needs counseling but doesn't want to go through main VA medical center, Vet Centers are often the right door.

    Details & eligibility
    Eligibility
    Eligibility depends on service history or qualifying experiences.
    Last verified
    2026-06-12V3
  • Legal Planning & Legal Aid

    TexasLawHelp — Wills, Estate Planning & Probate

    Free Texas legal information on wills, estate planning, probate, powers of attorney, guardianship, and planning for loss of health.

    Legal information · Texas

    A practical first stop for Texas families who need to understand basic legal documents before speaking with an attorney.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    VictimConnect Resource Center

    Confidential, trauma-informed information and referrals for victims of all crime types and their support networks.

    Nonprofit · National

    Broader than RAINN — covers any crime victim or concerned family member. Trauma-informed and confidential.

    Details & eligibility
    Eligibility
    Referral helpline — not psychotherapy.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    Open Path Psychotherapy Collective

    Reduced-fee therapy for people who cannot afford market rates.

    Nonprofit · National

    Bridges the gap between free community clinics and full-fee private therapy when neither fits.

    Details & eligibility
    Eligibility
    Not free — one-time membership fee plus reduced per-session rates. Confirm current pricing directly.
    Last verified
    2026-06-12V2
  • Legal Planning & Legal Aid

    TexasLawHelp — Legal Help Directory

    Finding Texas legal-aid organizations by county and issue.

    Legal aid · Texas · Local referral

    Useful when a family needs a real Texas legal-aid provider, not just educational materials.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Legal Planning & Legal Aid

    Houston Volunteer Lawyers

    Houston-area pro bono legal help for eligible individuals and families.

    Nonprofit · Houston / Harris County

    A local option for Houston-area families needing civil legal guidance or representation but unable to afford a private attorney.

    Details & eligibility
    Area served
    Houston / Harris County, Texas
    Eligibility
    Eligibility and case-type intake apply.
    Last verified
    2026-06-12V3
  • Emotional & Crisis Support

    NIMH — Schizophrenia and Psychosis

    Recognizing possible psychosis and the importance of early treatment.

    Government · National

    When a family is trying to understand what's happening to a loved one, this is the most credible non-medical starting point.

    Details & eligibility
    Eligibility
    Educational only — do not use to diagnose. SilK Foundation does not provide medical advice.
    Last verified
    2026-06-12V3
  • Legal Planning & Legal Aid

    FreeWill

    Simple, no-cost online estate-planning documents.

    Nonprofit · National · Online

    A useful starting point for simple planning needs, especially when cost is a barrier.

    Details & eligibility
    Eligibility
    FreeWill is not a law firm and is not a substitute for attorney advice. Families with complex assets, blended families, disability-benefits concerns, special needs trusts, guardianship questions, or contested family situations should consult an attorney.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    HealthCare.gov — Mental-Health Coverage

    Understanding mental-health and substance-use coverage on Marketplace plans.

    Government · National

    When you have or are choosing a Marketplace plan and want to know what therapy or psychiatry it covers.

    Details & eligibility
    Eligibility
    Cost-sharing, networks, and authorization rules vary by plan.
    Last verified
    2026-06-12V3
  • Financial Navigation

    National Foundation for Credit Counseling

    Nonprofit credit, debt, housing, student-loan, and budgeting counseling.

    Nonprofit · National

    Helpful when a family's first problem is cash flow — credit-card debt, medical bills, collections, or household budget triage.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    U.S. Department of Labor — Mental-Health Parity

    Understanding employer-plan mental-health benefits and parity protections.

    Government · National

    Use when a mental-health benefit is being denied or treated more restrictively than medical care — parity may apply.

    Details & eligibility
    Eligibility
    Parity rules do not apply identically to every plan type.
    Last verified
    2026-06-12V3
  • Financial Navigation

    Foundation for Financial Planning

    Pro bono financial planning for people in financial need.

    Nonprofit · National

    Good referral for families facing serious illness, caregiving, income disruption, or financial crisis who need planning support but cannot afford a private advisor.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ALS Association

    ALS-specific care services, education, equipment loans, multidisciplinary clinic locator, and advocacy.

    Nonprofit · National · Local chapters

    Best single starting point after an ALS diagnosis. The chapter network handles equipment loans, in-home support coordination, and connection to certified ALS clinics.

    Details & eligibility
    Eligibility
    SilK Foundation does not provide medical advice and does not recommend specific treatments, clinicians, or clinical trials.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ALS Association Care Connection

    Care-services intake and navigation for people newly diagnosed with ALS and their families.

    Nonprofit · National

    When you don't know where to start after a diagnosis, this is the door. A care coordinator can map out what comes next based on disease stage.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ALS Association Support Programs

    ALS Association's national support programs — education, support groups, care services, and disease information.

    Nonprofit · National

    Browse what's available nationally, then use the local-support locator to find the team that actually delivers in your area.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ALS United Greater New York

    Regional ALS care services, equipment loans, support groups, and clinic navigation for northern NJ and the greater NY region.

    Nonprofit · Northern NJ · New York metro

    Northern NJ ALS households should start here for care navigation rather than calling the national line — service is delivered regionally.

    Details & eligibility
    Area served
    Northern New Jersey and the New York metropolitan region
    Eligibility
    Service area is county-based and changes over time. Verify current NJ county coverage with the organization directly.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    ALS United Mid-Atlantic

    Regional ALS care services for parts of NJ and the Mid-Atlantic — care navigation, equipment, and family support.

    Nonprofit · South NJ · Mid-Atlantic

    South NJ households are more likely served by ALS United Mid-Atlantic than the NY-metro affiliate. Confirm coverage before assuming.

    Details & eligibility
    Area served
    Parts of New Jersey and the surrounding Mid-Atlantic region
    Eligibility
    County coverage varies; verify with the organization.
    Last verified
    2026-06-12V2
  • Financial Navigation

    Find an AFC (AFCPE)

    Finding an Accredited Financial Counselor (AFC®) for practical household financial counseling.

    Nonprofit · National

    AFC professionals may be a better fit than wealth advisors for families in crisis who need practical household financial stabilization.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    MS Navigator (National MS Society)

    Personalized MS information, practical-resource navigation, financial guidance, and local referrals from National MS Society's MS Navigator service.

    Nonprofit · National

    Single best starting point for an MS family. Navigators know what's open, what's local, and which assistance programs are currently funded.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS New Jersey Metro Chapter

    Regional MS programs, events, and connection for most of New Jersey via the NMSS NJ Metro chapter.

    Nonprofit · New Jersey

    Northern and central NJ MS families should start here for regional programming.

    Details & eligibility
    Area served
    Most of New Jersey (NMSS NJ Metro chapter)
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS Pennsylvania/South Jersey/Delaware Chapter

    Regional MS programs and connection for southern NJ counties and the adjacent PA/DE region.

    Nonprofit · South NJ · Pennsylvania · Delaware

    South Jersey MS families are usually served by this chapter, not the NJ Metro one. Confirm coverage.

    Details & eligibility
    Area served
    South Jersey and the Pennsylvania/Delaware region
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS South Central Chapter (Texas)

    Regional MS connection, programs, events, and navigation across Texas via the NMSS South Central chapter.

    Nonprofit · Texas

    Texas MS families should start with the South Central chapter for regional programs and connection.

    Details & eligibility
    Area served
    Texas (NMSS South Central Chapter service area)
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Atlantic Health — MS Center (Morristown / Bridgewater)

    Atlantic Health's MS Center — multidisciplinary care across Morristown and Bridgewater locations.

    Health system · North & Central NJ

    Right starting point for Morris, Sussex, Warren, Somerset, and Hunterdon County MS households.

    Details & eligibility
    Area served
    Morris/Sussex/Warren and the Somerset/Bridgewater corridor in New Jersey
    Eligibility
    Inclusion is not an endorsement. Verify referrals and insurance.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Baylor Medicine — Maxine Mesinger MS Clinic

    MS diagnostics, treatment, support, and multidisciplinary care at Baylor Medicine in the Texas Medical Center.

    Health system · Houston / Texas Medical Center

    One of Houston's principal MS specialty clinics. Use as a starting point for evaluation, second opinions, and complex care coordination.

    Details & eligibility
    Area served
    Greater Houston / Texas Medical Center
    Eligibility
    Inclusion is not an endorsement. Verify referrals, insurance, and current availability with the clinic.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Cooper University Health Care — MS / Neuroimmunology

    MS and neuroimmunology care at Cooper University Health Care in southern NJ.

    Health system · South NJ

    Primary MS-specialized starting point for Camden, Burlington, Gloucester, and Salem counties.

    Details & eligibility
    Area served
    South Jersey (Camden / Burlington / Gloucester area)
    Eligibility
    Inclusion is not an endorsement. Verify referrals and insurance.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Find Your ALS Association Chapter

    Locating the ALS Association chapter that serves your county for in-person support, equipment loans, and clinic referrals.

    Nonprofit · National · Local chapters

    Most ALS support is delivered through chapters, not the national office. Find yours before calling anywhere else.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Hackensack Meridian Health — MS Care

    MS multidisciplinary care across northern and central NJ via the Hackensack Meridian network.

    Health system · North & Central NJ

    One of the broadest NJ MS-care networks, with multiple-location access for North/Central/Shore residents.

    Details & eligibility
    Area served
    Hackensack and central New Jersey
    Eligibility
    Inclusion is not an endorsement. Verify referrals and insurance with the clinic.
    Last verified
    2026-06-12V2
  • Benefits & Government Support

    Medicare Before Age 65

    Medicare eligibility for people under 65, including the ALS pathway (immediate eligibility, no 24-month waiting period).

    Government · National

    Most under-65 disability claimants wait 24 months for Medicare. ALS waives that wait. Anyone newly diagnosed should know this and coordinate enrollment with SSA.

    Details & eligibility
    Eligibility
    Confirm effective dates and enrollment with SSA/Medicare for the individual case.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Multiple Sclerosis Association of America (MSAA)

    MS helpline, education, equipment programs, cooling products, and MRI/resource navigation.

    Nonprofit · National

    MSAA's practical-assistance programs (equipment, cooling, MRI access) fill gaps that NMSS doesn't directly address.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Find Local Help

    New Jersey County Offices on Aging & Disability

    Home care, caregiver support, long-term services, benefits, and transportation navigation through NJ county offices.

    Government · New Jersey

    NJ services are delivered county by county. Start with the county office to get routed to the actual program serving your address.

    Details & eligibility
    Area served
    All 21 New Jersey counties
    Last verified
    2026-06-12V3
  • Find Local Help

    NJ 211

    Statewide referral service for housing, food, utilities, transportation, home care, and caregiver resources in NJ.

    Nonprofit · New Jersey

    Fastest path to local NJ programs when an ALS household needs household-hardship help beyond the condition-specific stack.

    Details & eligibility
    Area served
    New Jersey (statewide)
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS Find Doctors & Resources

    ZIP-based locator for MS providers, Partners in MS Care, comprehensive centers, and community resources.

    Nonprofit · National

    The most reliable single locator for finding MS-specialized providers near you, with NMSS's Partners in MS Care designation as a quality signal.

    Details & eligibility
    Eligibility
    Inclusion is not an endorsement. Verify credentials, insurance, and current availability with the provider.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS Prescription Financial Assistance

    Medication, copay, insurance, and manufacturer-assistance pathway guidance for MS treatments.

    Nonprofit · National

    MS disease-modifying therapies are expensive. This is the map of who can help cover them.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Parkinson's Foundation

    Parkinson's-specific education, care-partner support, hospital-safety guidance, and local chapters.

    Nonprofit · National

    Best single starting point for anyone newly diagnosed with Parkinson's, or for a care partner trying to understand what's ahead.

    Details & eligibility
    Eligibility
    SilK Foundation does not provide medical advice and does not recommend specific treatments, clinicians, or clinical trials.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    SSA Compassionate Allowances

    Expedited Social Security disability determination for serious conditions on the Compassionate Allowances list, including ALS.

    Government · National

    Any ALS disability claim should be filed under Compassionate Allowances. The expedited processing meaningfully shortens the disability timeline.

    Details & eligibility
    Eligibility
    Expedited processing does not waive nonmedical eligibility rules (work history, income, assets). File with SSA or through an accredited representative.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    UTHealth Houston — Division of MS & Neuroimmunology

    Academic MS and neuroimmunology care at UTHealth Houston — diagnostics, treatment, research, and inflammatory CNS disorders.

    Health system · Houston / Texas Medical Center

    Best path for academic-tier MS care in Houston, especially for research participation and inflammatory CNS conditions.

    Details & eligibility
    Area served
    Greater Houston / Texas Medical Center
    Eligibility
    Inclusion is not an endorsement. Verify referrals, insurance, and current availability.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    VA ALS Benefits

    VA benefits for veterans diagnosed with ALS — presumed service-connected for any veteran with 90+ days of active service.

    Government · National

    Any veteran with ALS should file a VA disability claim — service connection is presumed and the benefits package (healthcare, home adaptation, family support) is substantial.

    Details & eligibility
    Eligibility
    Eligibility requires veteran status and 90+ days of active service. Work with a veterans service officer for the claim.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    VA Multiple Sclerosis Centers of Excellence

    MS care navigation, infusion, MRI, and ongoing coordination for eligible veterans.

    Government · National

    Any veteran with MS should start here. The Centers of Excellence provide integrated MS care that often exceeds what civilian VA neurology offers alone.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Bridging Voice

    Augmentative and alternative communication (AAC), voice banking, eye-gaze technology, and communication-access training for people with ALS.

    Nonprofit · National

    When speech is affected by ALS, communication planning should start before it's urgent. Bridging Voice is built specifically for that planning.

    Details & eligibility
    Eligibility
    Technology support must be coordinated with the ALS clinic's speech-language pathologist and funding pathway.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Consortium of Multiple Sclerosis Centers Directory

    Searching MS-care centers by state across the U.S. and Canada.

    Nonprofit · National · Canada

    Parallel locator to NMSS's Find Doctors. Useful for finding MS-specialized academic centers and second-opinion options.

    Details & eligibility
    Eligibility
    Professional directory. Inclusion is not an endorsement; verify each center.
    Last verified
    2026-06-12V3
  • Legal & Financial Stability

    Disability Rights New Jersey

    Disability-rights information, advocacy, and assistive-technology programs for New Jersey residents.

    Nonprofit · New Jersey

    When a benefits denial, accommodation refusal, or access issue affects an ALS household in NJ, DRNJ is the state's P&A advocate.

    Details & eligibility
    Area served
    New Jersey (statewide)
    Last verified
    2026-06-12V3
  • Find Local Help

    Houston / Harris County Aging & Disability Resource Center

    Single-entry point for home and community services, caregiver support, benefits, and long-term-care navigation in Harris County.

    Local agency · Houston / Harris County

    When you don't know which county program applies, the ADRC's job is to figure that out and route you. Critical for ALS families navigating new home-care, equipment, and respite needs.

    Details & eligibility
    Area served
    Houston / Harris County, Texas
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Houston Methodist — MS Services

    MS evaluation and multidisciplinary symptom management at Houston Methodist neurology.

    Health system · Greater Houston

    Useful alternative to Texas Medical Center academic centers, especially for households closer to Houston Methodist locations.

    Details & eligibility
    Area served
    Greater Houston
    Eligibility
    Inclusion is not an endorsement. Verify referrals and insurance.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    MSAA Cooling Distribution Program

    Cooling vests and accessories for qualifying people with MS who experience heat sensitivity.

    Nonprofit · National

    Heat-triggered symptom worsening is one of the most disruptive parts of living with MS. Cooling gear is high-impact, often unaffordable, and exactly what MSAA's program targets.

    Details & eligibility
    Eligibility
    Availability changes seasonally. Check current program status — application required.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    MSAA Equipment Distribution Program

    Safety, mobility, and daily-living equipment for qualifying applicants with MS.

    Nonprofit · National

    When clinical eval has identified what equipment is needed but coverage doesn't pay, MSAA's program is often the next stop.

    Details & eligibility
    Eligibility
    Availability and inventory vary. Check current program status before assuming an item is available.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    NMSS Disability Benefits Guide

    SSDI, private disability, and disability-planning information specific to MS.

    Nonprofit · National

    MS-specific framing of disability benefits — including timing relative to relapse, work history, and progressive course.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS Disease-Modifying Therapy Patient Assistance

    Manufacturer patient-assistance program links for MS disease-modifying therapies.

    Nonprofit · National

    Each DMT has its own manufacturer assistance program. This index saves time finding the right one.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS In Your Area

    Finding your regional NMSS chapter, events, support programs, and volunteer opportunities.

    Nonprofit · National

    Most NMSS programming runs through regional chapters. Find yours before calling national.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS Support Groups & Connection Programs

    Local and virtual MS support groups and peer-connection programs by ZIP.

    Nonprofit · National

    Support-group schedules change frequently — this is the canonical source rather than third-party listings.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Parkinson's Foundation Helpline (1-800-4PD-INFO)

    Talking to a Parkinson's-trained specialist about your situation.

    Nonprofit · National

    First call when someone is overwhelmed and needs a human to triage Parkinson's questions — medication concerns, hospitalization, finding a movement-disorder specialist, care-partner exhaustion.

    Details & eligibility
    Eligibility
    The helpline provides information and referral, not personalized medical advice. Urgent medical concerns should go to a clinician or 911.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Team Gleason

    Assistive technology, communication devices, and adventure programs for people living with ALS.

    Nonprofit · National

    When speech, mobility, or independence is being lost to ALS, Team Gleason's technology grants are often the bridge that keeps a person connected to family and the world.

    Details & eligibility
    Eligibility
    Equipment grants subject to application review and funding availability.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    VA Caregiver Support Program

    Caregiver education, support, referrals, and possible program eligibility for veterans' caregivers — including ALS families.

    Government · National

    ALS family caregivers carrying a veteran should know what VA offers. The comprehensive program (PCAFC) includes stipends and health-care eligibility for qualifying caregivers.

    Details & eligibility
    Eligibility
    Benefits vary by program and eligibility determination.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    VA MS Regional Specialty Programs

    Locating the regional VA MS-care facility serving a veteran's location, including infusion and telehealth.

    Government · National

    Map of where coordinated VA MS care actually runs. Use to find the nearest regional MS specialty program.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Can Do Multiple Sclerosis

    Free health, wellness, symptom-management, and care-partner education programs for MS families.

    Nonprofit · National

    Most MS education is medical. Can Do MS is wellness-and-life-skills oriented and built around the family unit.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Compassionate Care ALS (CCALS)

    Guidance, equipment knowledge, caregiving, communication, and family-support coordination for ALS families.

    Nonprofit · National

    When the official channels haven't yet connected and a family needs guidance on what to do next — what equipment, what calls, what to plan for.

    Details & eligibility
    Eligibility
    Availability and service geography may vary.
    Last verified
    2026-06-12V2
  • Find Local Help

    Houston-Galveston ADRC

    Disability and long-term-services navigation for the multi-county Gulf Coast region outside Harris County.

    Government · Multi-county Gulf Coast

    Outside Harris County, H-GAC is the no-wrong-door point. Critical for Gulf Coast MS families not served by Houston/Harris ADRC.

    Details & eligibility
    Area served
    Houston-Galveston multi-county Gulf Coast region
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    MDA Care Center Network

    Locating MDA-affiliated multidisciplinary neuromuscular care centers that serve ALS, by ZIP.

    Nonprofit · National · Local clinics

    When the local ALS Association clinic option has limited capacity or doesn't match insurance, MDA Care Centers are an alternative path to coordinated ALS care.

    Details & eligibility
    Eligibility
    Inclusion is not an endorsement. Verify that the specific center treats ALS, accepts the person's insurance, and is currently accepting patients.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    MDA Resource Center

    MDA's general navigation, disease information, and community-resource help for ALS families.

    Nonprofit · National

    Use the Resource Center for navigation and information; use the Care Center Network locator (separate record) to find a multidisciplinary clinic.

    Details & eligibility
    Eligibility
    Not an emergency or direct medical service.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    Medicare — Durable Medical Equipment Coverage

    Understanding Medicare coverage rules for medically necessary durable medical equipment.

    Government · National

    Critical for ALS families navigating wheelchairs, BiPAPs, hospital beds, and other equipment. Coverage rules drive what's paid for and what isn't.

    Details & eligibility
    Eligibility
    Supplier participation, documentation, coinsurance, and plan rules apply. Confirm with the supplier and Medicare for the specific item.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    MS Focus Homecare Assistance Grant

    Home care, caregiver respite, therapeutic services, and transition-home support for people with MS.

    Nonprofit · National

    When an MS family needs to hire help but can't quite cover it, MS Focus's home-care grant can bridge a few weeks.

    Details & eligibility
    Eligibility
    Funding is limited and application-based.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    MS Focus: Multiple Sclerosis Foundation

    Emergency, healthcare, home-care, assistive-technology, computer, and transportation programs for MS families.

    Nonprofit · National

    MSAA and NMSS cover the big things; MS Focus often covers the urgent small ones (a missed rent payment, transportation crisis, computer for accessibility).

    Details & eligibility
    Eligibility
    Programs open and close; check current status before applying.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    MSFriends

    Confidential one-to-one peer connection with trained MS volunteer mentors.

    Nonprofit · National

    Sometimes you don't need a counselor — you need someone who knows. MSFriends is built for that.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NMSS Pediatric MS

    Pediatric-MS-specific education and provider-pathway resources from the National MS Society.

    Nonprofit · National

    MS in children is rare and underdiagnosed. NMSS's pediatric resources are the field's leading family-facing reference.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Parkinson's Foundation Hospital Safety Guide (Aware in Care)

    People with Parkinson's who are facing a hospital stay or surgery and need to protect medication timing.

    Nonprofit · National

    Missed or delayed Parkinson's medication during hospitalization is dangerous. This kit gives families a checklist and a script.

    Details & eligibility
    Eligibility
    The toolkit is patient-education material, not a substitute for talking with your clinician about medication timing.
    Last verified
    2026-06-12V3
  • Caregiver Support

    ARCH National Respite Locator

    Finding state and local respite-care resources for family caregivers.

    Nonprofit · National

    Caregiver respite is one of the most undersupplied services in ALS care. ARCH's locator is the broadest map of what exists.

    Details & eligibility
    Eligibility
    Locator inclusion does not guarantee openings, payment, or ALS expertise. Verify each program.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Can Do MS Care Partner Meetups

    Virtual support and community specifically for MS care partners.

    Nonprofit · National

    Care partners need their own space, separate from patient-focused groups. This program is exactly that.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Hope Loves Company

    Programs for children and young adults living in families affected by ALS.

    Nonprofit · National

    The kids in an ALS family carry weight they didn't ask for. Hope Loves Company is the resource built for them.

    Details & eligibility
    Eligibility
    Program dates, formats, and eligibility should be checked live.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    I AM ALS

    Patient-led ALS community, newly-diagnosed toolkits, advocacy, and peer connection.

    Nonprofit · National

    Strong community resource for people who want to talk to others living with ALS, not just clinicians or care coordinators.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    Job Accommodation Network (JAN)

    Workplace accommodations and employment guidance for people with disabilities, including ALS.

    Government · National

    If you're working and want to stay employed through an ALS diagnosis, JAN consultants can advise on practical accommodations and ADA rights.

    Details & eligibility
    Eligibility
    Information service — not legal representation.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    MS Focus Assistive Technology Program

    Information and possible funding for assistive-technology devices supporting independence.

    Nonprofit · National

    If state assistive-technology programs aren't a fit, MS Focus is the MS-specific second look.

    Details & eligibility
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    NMSS Financial Planning Resources

    Financial education and Financial Education Partners pathway for MS families.

    Nonprofit · National

    Most financial planners don't understand chronic-disease dynamics. NMSS's vetted partners do.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Parents of Kids with MS — Virtual Support Group

    Virtual peer-support group specifically for parents of children and young adults with MS.

    Nonprofit · National

    Parents of kids with MS are a small community. This group is one of the few places they can meet each other.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Parkinson's Foundation Care Partner Resources

    Care partners of someone living with Parkinson's.

    Nonprofit · National

    Care partners often carry an invisible workload; this hub names the work and points to support specific to Parkinson's.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    SSA Adult Neurological Listings (11.00)

    SSA's official medical-evaluation criteria for neurological impairments, including MS-relevant listings.

    Government · National

    Understanding which clinical findings the SSA looks for can shape how a treating physician documents an MS disability claim.

    Details & eligibility
    Eligibility
    Reference only — eligibility is determined by SSA based on the full medical and work record.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    FundFinder (PAN Foundation)

    Alerts for charitable disease-assistance funds opening or closing — including MS funds.

    Nonprofit · National

    Charitable funds open and close on cycles you can't predict. FundFinder is the way to catch the window.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    HealthWell Foundation — MS Medicare Access Fund

    Copay or premium support for qualifying Medicare beneficiaries with MS when funding is available.

    Nonprofit · National

    Specifically targeted at Medicare beneficiaries — the population most likely to face DMT cost barriers without manufacturer help.

    Details & eligibility
    Eligibility
    Availability changes frequently — check before applying.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Kessler Foundation — MS Research

    MS rehabilitation, cognitive, and mobility research participation through Kessler Foundation in New Jersey.

    Nonprofit · National · New Jersey

    When a family wants to contribute to MS research and is in the NJ region, Kessler is the natural connection.

    Details & eligibility
    Area served
    National research with NJ base
    Eligibility
    Research participation is not clinical care. Discuss with the treating MS team.
    Last verified
    2026-06-12V3
  • Find Local Help

    METROLift — Houston ADA Paratransit

    ADA paratransit door-to-door service for Houston-area riders unable to use fixed-route service.

    Local agency · Houston METRO service area

    As ALS progresses, getting to clinic appointments becomes harder. METROLift is the primary public-transit answer for Houston-area paratransit.

    Details & eligibility
    Area served
    Houston METRO service area
    Eligibility
    Eligibility-based; requires application and ADA assessment.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    NJ Assistive Technology Advocacy Center

    Statewide AT information, demos, loans, reuse, and funding navigation in New Jersey.

    Nonprofit · New Jersey

    Same role as TTAP in Texas — invaluable for ALS families considering AAC, mobility, or environmental-control tech.

    Details & eligibility
    Area served
    New Jersey (statewide)
    Last verified
    2026-06-12V3
  • Find Local Help

    NJ TRANSIT Access Link — ADA Paratransit

    ADA paratransit door-to-door transportation in NJ TRANSIT eligible service areas.

    Government · NJ TRANSIT service areas

    As ALS limits mobility, Access Link is NJ's main public-transit paratransit option for clinic and community trips.

    Details & eligibility
    Area served
    NJ TRANSIT eligible service areas
    Eligibility
    Eligibility-based; requires application and ADA assessment.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Northeast ALS Consortium (NEALS)

    ALS clinical-research education, trial navigation, and patient/family resources from the consortium that runs most U.S. ALS trials.

    Nonprofit · National

    When considering a trial, NEALS is a more credible starting point than commercial trial finders. Pair with the treating clinic's research team.

    Details & eligibility
    Eligibility
    NEALS does not determine eligibility or recommend specific trials. Eligibility and risks should be discussed with the study team and treating clinicians.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    PAN Foundation — Multiple Sclerosis Fund

    Copay assistance for qualifying patients with MS when the fund is open and accepting applications.

    Nonprofit · National

    When DMT copays are unaffordable, charitable funds like PAN are the bridge. Check status before assuming open.

    Details & eligibility
    Eligibility
    Availability changes frequently. Use FundFinder to be alerted when funds open. Never assume open without a live check.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Parkinson's Foundation — In Your Area

    Finding local Parkinson's chapters, support groups, and Centers of Excellence.

    Nonprofit · National · Local chapters

    Local chapters host peer support groups, exercise programs, and education events. Centers of Excellence are accredited movement-disorder programs.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Texas Technology Access Program (TTAP)

    Statewide assistive-technology demonstrations, device loans, equipment reuse, and financing-information services in Texas.

    Government · Texas

    Before buying expensive equipment, try it through TTAP's demo/loan program. They also know which financing routes work in Texas.

    Details & eligibility
    Area served
    Texas (statewide)
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    American Parkinson Disease Association (APDA)

    Parkinson's information, local chapter programs, peer support, and wellness/exercise resources.

    Nonprofit · National · Local chapters

    Complementary to the Parkinson's Foundation — many families benefit from connecting to both. Strong wellness/exercise programming in particular.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Find Local Help

    Harris County RIDES

    Subsidized transportation for eligible Harris County older adults and people with disabilities.

    Local agency · Harris County

    Useful for Harris County ALS households outside METRO's footprint or needing more flexible scheduling than ADA paratransit allows.

    Details & eligibility
    Area served
    Harris County, Texas
    Eligibility
    Eligibility-based and subject to available funding.
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    NIH NINDS — ALS Information

    Plain-language ALS overview, treatment approaches, and research directions from the NIH.

    Government · National

    The most credible non-medical reference for understanding ALS without wading through commercial sites.

    Details & eligibility
    Eligibility
    Educational only — does not substitute for a neurologist or ALS specialist.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    NIH NINDS — Multiple Sclerosis Information

    Government-reviewed overview of MS, treatments, and research directions.

    Government · National

    The most credible non-medical reference for understanding MS. Cite when families are wading through commercial sites.

    Details & eligibility
    Eligibility
    Educational only — not personalized medical advice.
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    NJ Division of Vocational Rehabilitation Services

    Employment retention, transition, and disability-related work support in New Jersey.

    Government · New Jersey

    If a New Jersey resident with ALS is still working, DVRS may pay for the accommodations and technology that keep employment viable.

    Details & eligibility
    Area served
    New Jersey (statewide)
    Last verified
    2026-06-12V3
  • Benefits & Government Support

    Texas Workforce Commission — Vocational Rehabilitation

    Work-retention, transition, accommodations, and eligible assistive-service support for Texans with disabilities.

    Government · Texas

    If a Texas resident with ALS is still working, VR may pay for accommodations and technology that would otherwise be out of reach.

    Details & eligibility
    Area served
    Texas (statewide)
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ClinicalTrials.gov — ALS

    Searching active ALS clinical trials by location, phase, and intervention type.

    Government · National

    For families considering trial participation, this is where current trials are listed officially — not on commercial or advocacy sites that may be out of date.

    Details & eligibility
    Eligibility
    Eligibility, location, and participation requirements vary by trial. SilK Foundation does not endorse specific trials and does not provide medical advice.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ClinicalTrials.gov — Multiple Sclerosis

    Searching active MS clinical trials by location, phase, and intervention.

    Government · National

    For families considering trials, this is the canonical registry. Use with the treating clinic's research team.

    Details & eligibility
    Eligibility
    Eligibility and location requirements vary by trial. SilK Foundation does not endorse specific trials.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Davis Phinney Foundation

    Living-well-with-Parkinson's programs, education, and care-partner support.

    Nonprofit · National

    Practical, action-oriented programming for newly-diagnosed and longer-time Parkinson's families.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Houston Center for Independent Living

    Independent-living skills, advocacy, peer support, and local disability navigation for greater Houston.

    Nonprofit · Greater Houston

    CILs are peer-led and disability-positive. For an ALS household figuring out a new way of living, HCIL is a natural ally.

    Details & eligibility
    Area served
    Greater Houston, Texas
    Last verified
    2026-06-12V2
  • Condition-Specific Foundations

    Every Victory Counts Manual (Davis Phinney Foundation)

    A single comprehensive Parkinson's family handbook.

    Nonprofit · National

    The most-recommended single Parkinson's reference for newly-diagnosed families. Free print copy and free PDF.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Davis Phinney Foundation Ambassador Program

    1:1 peer support from someone who's lived with Parkinson's.

    Nonprofit · National

    Often the single most valuable connection in the first year of a Parkinson's diagnosis: talking with someone who's a few years further along.

    Details & eligibility
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    Michael J. Fox Foundation

    Parkinson's research education and clinical-trial discovery (Fox Trial Finder).

    Nonprofit · National

    Most useful when a family wants to understand the science, evaluate emerging treatments, or consider clinical-trial participation.

    Details & eligibility
    Eligibility
    Clinical-trial decisions should be made with your treating clinician. SilK Foundation does not recommend specific trials.
    Last verified
    2026-06-12V3
  • Condition-Specific Foundations

    ClinicalTrials.gov — Parkinson's disease search

    Finding registered Parkinson's clinical trials.

    Government · National

    Use when a family is actively considering clinical-trial participation and wants the authoritative listing rather than a curated summary.

    Details & eligibility
    Eligibility
    Trial listings change frequently. Confirm recruitment status with the trial site before traveling. SilK Foundation does not recommend specific trials.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Alabama Disabilities Advocacy Program (ADAP)

    Residents of Alabama facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Alabama

    Best first call in Alabama when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Alabama
    Notes
    Phase-6 verified 2026-06-13; URL updated from adap.ua.edu redirect.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Community Legal Aid Society — Disabilities Law Program

    Residents of Delaware facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Delaware

    Best first call in Delaware when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Delaware
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Law Center (Utah)

    Residents of Utah facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Utah

    Best first call in Utah when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Utah
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Law Center of Alaska

    Residents of Alaska facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Alaska

    Best first call in Alaska when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Alaska
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    disAbility Law Center of Virginia

    Residents of Virginia facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Virginia

    Best first call in Virginia when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Virginia
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Law Center, Inc.

    Residents of Massachusetts facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Massachusetts

    Best first call in Massachusetts when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Massachusetts
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Law Colorado

    Residents of Colorado facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Colorado

    Best first call in Colorado when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Colorado
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Arizona

    Residents of Arizona facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Arizona

    Best first call in Arizona when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Arizona
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Arkansas

    Residents of Arkansas facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Arkansas

    Best first call in Arkansas when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Arkansas
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights California

    Residents of California facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · California

    Best first call in California when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide California
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Center — New Hampshire

    Residents of New Hampshire facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · New Hampshire

    Best first call in New Hampshire when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide New Hampshire
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Center of Kansas

    Residents of Kansas facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Kansas

    Best first call in Kansas when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Kansas
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Connecticut

    Residents of Connecticut facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Connecticut

    Best first call in Connecticut when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Connecticut
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights DC at University Legal Services

    Residents of District of Columbia facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · District of Columbia

    Best first call in District of Columbia when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide District of Columbia
    Notes
    Phase-6 verified 2026-06-13; URL updated from universitylegalservices.org.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Florida

    Residents of Florida facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Florida

    Best first call in Florida when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Florida
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    DisAbility Rights Idaho

    Residents of Idaho facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Idaho

    Best first call in Idaho when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Idaho
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Iowa

    Residents of Iowa facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Iowa

    Best first call in Iowa when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Iowa
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Louisiana

    Residents of Louisiana facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Louisiana

    Best first call in Louisiana when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Louisiana
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Maine

    Residents of Maine facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Maine

    Best first call in Maine when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Maine
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Maryland

    Residents of Maryland facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Maryland

    Best first call in Maryland when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Maryland
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Michigan

    Residents of Michigan facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Michigan

    Best first call in Michigan when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Michigan
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Montana

    Residents of Montana facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Montana

    Best first call in Montana when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Montana
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Nebraska

    Residents of Nebraska facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Nebraska

    Best first call in Nebraska when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Nebraska
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights New Jersey

    Residents of New Jersey facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · New Jersey

    Best first call in New Jersey when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide New Jersey
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights New Mexico

    Residents of New Mexico facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · New Mexico

    Best first call in New Mexico when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide New Mexico
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights New York

    Residents of New York facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · New York

    Best first call in New York when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide New York
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights North Carolina

    Residents of North Carolina facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · North Carolina

    Best first call in North Carolina when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide North Carolina
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights of West Virginia

    Residents of West Virginia facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · West Virginia

    Best first call in West Virginia when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide West Virginia
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Ohio

    Residents of Ohio facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Ohio

    Best first call in Ohio when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Ohio
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Oklahoma (DROK)

    Residents of Oklahoma facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Oklahoma

    Best first call in Oklahoma when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Oklahoma
    Notes
    Phase-6 verified 2026-06-13; renamed and URL updated from Oklahoma Disability Law Center / okdlc.org.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Oregon

    Residents of Oregon facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Oregon

    Best first call in Oregon when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Oregon
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Pennsylvania

    Residents of Pennsylvania facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Pennsylvania

    Best first call in Pennsylvania when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Pennsylvania
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Rhode Island

    Residents of Rhode Island facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Rhode Island

    Best first call in Rhode Island when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Rhode Island
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights South Carolina

    Residents of South Carolina facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · South Carolina

    Best first call in South Carolina when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide South Carolina
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights South Dakota

    Residents of South Dakota facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · South Dakota

    Best first call in South Dakota when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide South Dakota
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Tennessee

    Residents of Tennessee facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Tennessee

    Best first call in Tennessee when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Tennessee
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Vermont

    Residents of Vermont facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Vermont

    Best first call in Vermont when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Vermont
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Washington

    Residents of Washington facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Washington

    Best first call in Washington when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Washington
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Disability Rights Wisconsin

    Residents of Wisconsin facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Wisconsin

    Best first call in Wisconsin when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Wisconsin
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Equip for Equality, Inc.

    Residents of Illinois facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Illinois

    Best first call in Illinois when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Illinois
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Georgia Advocacy Office

    Residents of Georgia facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Georgia

    Best first call in Georgia when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Georgia
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Hawaii Disability Rights Center

    Residents of Hawaii facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Hawaii

    Best first call in Hawaii when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Hawaii
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Indiana Disability Rights

    Residents of Indiana facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Indiana

    Best first call in Indiana when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Indiana
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Kentucky Protection and Advocacy

    Residents of Kentucky facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Kentucky

    Best first call in Kentucky when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Kentucky
    Notes
    Phase-6 verified 2026-06-13.
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Minnesota Disability Law Center

    Residents of Minnesota facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Minnesota

    Best first call in Minnesota when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Minnesota
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Missouri Protection and Advocacy Services

    Residents of Missouri facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Missouri

    Best first call in Missouri when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Missouri
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Nevada Disability Advocacy and Law Center

    Residents of Nevada facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Nevada

    Best first call in Nevada when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Nevada
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    North Dakota Protection & Advocacy Project

    Residents of North Dakota facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · North Dakota

    Best first call in North Dakota when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide North Dakota
    Last verified
    2026-06-12V3
  • Disability & Lifelong Care

    Wyoming P&A System

    Residents of Wyoming facing disability-related discrimination, benefit denials, or special-education / community-living issues.

    Nonprofit · Wyoming

    Best first call in Wyoming when a disability-related right has been denied — IEP fights, SSI/SSDI appeals, ADA access, abuse/neglect in facilities, voting access.

    Details & eligibility
    Area served
    Statewide Wyoming
    Last verified
    2026-06-12V3

Quick glossary

Common acronyms.

SSDI
Social Security Disability Insurance
SSI
Supplemental Security Income
ADRC
Aging and Disability Resource Center
POA
Power of Attorney
IDD
Intellectual and Developmental Disability
ABLE
Achieving a Better Life Experience (tax-advantaged savings)
988
Suicide & Crisis Lifeline — call or text 988
PD
Parkinson's disease — a progressive neurological condition. Some users also type 'PD' for other things; SilK shows Parkinson's resources when context is ambiguous.
DBS
Deep Brain Stimulation — a surgical therapy used in some Parkinson's cases.
Aware in Care
Parkinson's Foundation's hospital-safety toolkit, designed to help people with Parkinson's communicate medication timing and care needs during hospital stays.
529 Plan
Tax-advantaged education savings plan used for qualified education expenses.
529A / ABLE
Tax-advantaged savings account for eligible people with disabilities, used for qualified disability expenses.
Special Needs Trust
Legal trust that may help provide for a person with disabilities while preserving eligibility for certain public benefits. Requires qualified legal advice.
Advance Directive
Document that states healthcare wishes and may appoint someone to make medical decisions if the person cannot.
Durable POA
Durable Financial Power of Attorney — allows a trusted person to handle financial matters if the grantor cannot act.
Supported Decision-Making
Alternative to guardianship where a person with a disability keeps decision-making rights while receiving help understanding choices.
Benefits Protection
Planning intended to avoid accidentally disrupting SSI, Medicaid, housing assistance, or other needs-based benefits.

Disclaimer

SilK Foundation provides this Resource Library for general informational purposes only. The inclusion of a resource does not constitute endorsement, legal advice, medical advice, financial advice, tax advice, benefits advice, or professional recommendation. SilK Foundation is not paid for listing these resources unless expressly disclosed. Families should evaluate resources independently and consult qualified professionals for advice specific to their circumstances. Resource availability, eligibility, and services may vary by location and may change over time.